Combined Self-care camps in PHCs

The project envisages to improve the health (and quality of life) of persons affected by leprosy and lymphatic filariasis (LF) in 32 Primary health centers (PHCs) of four states (Bihar- 4 PHCs, Jharkhand -8 PHCs, Rajasthan -6 PHCs and UP- 14 PHCs) by providing them training on selfcare. The project focuses on capacitating persons affected by leprosy & LF in disability care and management by teaching and adapting self-care. They are also supported with assistive and protective devices to take care of their anesthetic hands, eyes and feet. The project promotes early case detection and prevention of new disabilities through capacity building (Sensory Testing and Voluntary Muscle Testing) of general health care staff. Those already suffering from permanent disability due to leprosy and LF are facilitated to undergo reconstructive surgeries. For sustainability, engagement of Panchayati Raj Institution (PRI), ASHA, general health care staff, and CBOs are being ensured

Our Approach

It is not just the physical effects of leprosy which devastates lives. The prejudice that people experience is separating them from society and excluding them from full participation in all ways of life, causing many affected and disabled by leprosy to feel ashamed and worthless.

Empowering PWD (DID)

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Making Change-agents

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Disable Friendly Villages (Multi-country project)

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Study on leprosy stigma in Jharkhand GHC staff

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Disable Friendly Toilets (ONGC)

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Mental wellbeing study in Jaunpur and Bokaro

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A barrier to treatment

Not only physical effects of leprosy have an impact on the persons affected by this disease, but other consequences are felt even long after treatment of the disease. Social stigma and discrimination are major barriers for equal participation at community level and in wider society. This terrible stigma is also a barrier to treatment. Many people hide away, avoiding a diagnosis for fear of its consequences.