Name – Ajay,
Age – 40 years,
Location – Amroha,
Ajay was banished from his village and ended up in a leprosy colony in Amroha, India. Here he lives with his wife and son. To provide for his family he is forced to go out into the streets to beg for money. He fervently hopes that his son will never have to beg for a living. Ajay’s story shows how stigma and discrimination can affect not just individuals with leprosy, but their families as well, regardless of whether or not they also have leprosy.
“When I was only fifteen years old, leprosy changed my life. I discovered a strange spot on my skin. I thought it would disappear with me. But it only got worse. Then I also lost the feeling in my hands and feet. My family and the other villagers kept me at a distance. They would keep staring at my deformed hands and feet. They were afraid they would become affected with leprosy as well. My mother was the only one who didn’t mind touching me and caring for me. But then, suddenly, my mother died. I didn’t know what to do without her. Everyone else loathed my presence; there was not a soul willing to help me. I felt so helpless and lonely that I decided to leave my village. Afraid of all that I had to face.It was only then that I went to see a doctor. He told me I had leprosy. He gave me medicines and treated the many wounds and ulcers I had contracted. ‘You will find a leprosy colony in Amroha’, he told me. ‘You can live there.’ And so I did. Where else could I go?
My wife, son, and I live an isolated life here, together with about thirty other families. I barely have the money to provide for my family. Every day I try to get a few rupees begging. I don’t have a choice. Nobody wants to employ me because of my deformies. My greatest worry is the future of my thirteen-year-old son Shiv Kumar. He doesn’t have leprosy, but he’s discriminated all the same. There is a chance he’ll never get married. People don’t want the child of a person affected by leprosy. They simply won’t accept a marriage like that. It’s my dream that my son will never be forced to beg, and will be able to build a better life outside the leprosy colony. I don’t want him to go through the same misery I have gone through. He should not become the victim of my leprosy. I want him to pursue an educaon, as it gives him a better outlook for the future, but sadly that’s out of my hands.”NLR have reported that Ajay has now received training in self-care and his son Shiv Kumar will undergo vocational training.